Justin Moy, an 18-year-old Concord, Mass. native, is currently a freshman in college majoring in bioinformatics so he can one day work toward finding treatments and cures for muscular dystrophy.
Justin, who lives with congenital muscular dystrophy (CMD) and uses a power wheelchair, has always been intensely focused on what is possible rather than dwelling on limitations. It is an attitude instilled in him at a young age by his parents. The oldest child of Prow Sarnsethsiri and Chris Moy, Justin has always dreamed big and focused on the open doors in life.
Justin has been living with the effects of CMD since birth, although he was officially diagnosed at 6 months old. Since his diagnosis, MDA has played a major role in Justin’s life, providing services and opportunities that have enabled him to thrive. One of Justin’s fondest memories was his time at MDA Summer Camp, where he was able to befriend other kids like him.
Muscular Dystrophy Association is leading the fight against muscular dystrophy, ALS, and related neuromuscular diseases. These debilitating degenerative disorders cause immeasurable pain to sufferers and those who care for them; our goal is to help lessen the pain.
We support research projects worldwide to accelerate treatments and cures that will put these disorders in our rearview forever. We help provide care for individuals from Day 1 of their diagnosis to make sure they’re getting the best treatment available. We empower families across the country with services and support, like equipment assistance and summer camp programs, right in their hometowns. And we’re able to do all of this because we have the support of amazing people like you.
Together, we can help kids and adults grow stronger and live longer, more fulfilled lives.
About Ride For Life
In a field 33 years ago, the Eastern Harley-Davidson Dealers Association (EHDDA) decided to do something about the neuromuscular disorders that were claiming the physical strength, independence, and lives of people all over the country and the world. They didn’t know then that the event they created would span three decades, host over 50,000 participants and -most importantly- raise over $25 million dollars to fight degenerative muscle diseases. In 2017 for the first time the event was relocated to western Pennsylvania because of the support of the Western PA Harley-Davidson Dealers Association and their participants.
Over the years Ride for Life has become the world’s largest Harley-Davidson fundraising event to benefit MDA. Each Ride for Life event brings riders and H.O.G. Chapter members together, partnering them with families and kids living with neuromuscular diseases. The weekend-long celebration is the culmination of a year of fundraising by Harley-Davidson dealerships; it’s a chance for MDA Ambassadors to be rock stars and for client families to spend an unforgettable, action-packed weekend with friends and supports.
In 2020 the Harley-Davidson Motor Company and MDA celebrate a 40-year partnership of creating FREEDOM. The freedom to ride and freedom from the harm of neuromuscular disease is the synergy that led to the creation of Ride for Life.
The EHDDA is comprised of authorized Harley-Davidson Dealerships throughout the Mid-Atlantic region, many of whom are second and third generation owners, dedicated to every aspect of professional service for their customers. They have the common goals of providing the best riding experiences and of helping charitable events making the riding community one of the most generous groups in the nations. The EHDDA and its dealers contribute well over $3 million dollars annually to important community causes.